You are not alone.
Get Help
If you or a loved one are facing challenges with accessing care, affording medications, or navigating a complex diagnosis, Voice & Value Health Advocacy Foundation is here to support you.
How We Can Help
Our services are designed to provide guidance, advocacy, and compassionate support every step of the way. We assist individuals and families facing:
- Cancer diagnoses
- Rare diseases
- High medication costs
- Insurance challenges
- Barriers to accessing care
Cancer Advocacy
What It Means for You
A cancer diagnosis doesn’t just impact your physical health—it instantly alters your emotional, financial, and daily life. Between complex treatment schedules, medical terminology, and insurance protocols, it is incredibly easy to feel lost in the system. Advocacy bridges the gap, ensuring you are treated as a person, not just a medical chart.
How We Step In
Deciphering the Diagnosis
We translate complex oncological jargon into plain, actionable language so you understand your specific pathology and treatment options.
Connecting the Dots
We map out local and national support networks, including financial aid programs, co-pay assistance, and specialized emotional counseling for both patients and family caregivers.
Your Second Voice
We equip you with the right questions to ask your oncology team, ensuring your personal values and quality-of-life goals remain at the center of your care plan.
Rare Disease Advocacy
What It Means for You
Living with a rare disease often means enduring a long, exhausting journey just to get an accurate diagnosis. Because these conditions affect smaller populations, clinical data can be scarce, specialized doctors are hard to find, and patients frequently report feeling invisible to the broader healthcare system.
How We Step In
Accessing the Specialists
We help you locate and connect with regional research institutions, clinical trials, and dedicated specialists who focus on your specific condition.
Building Your Care Ecosystem
We help consolidate your medical records and coordinate communication between different doctors so your care isn’t fragmented.
Validating Your Experience
We connect individuals and families to rare disease registries and peer support communities, ensuring you never have to walk this highly specific path alone.
Healthcare Navigation
What It Means for You
Modern healthcare infrastructure can feel like an intentional maze. From pre-authorizations and insurance denials to finding out-of-network costs, the administrative burden of being sick is often as taxing as the illness itself. Navigation is the process of breaking down these institutional barriers.
How We Step In
Insurance & Appeals Support
We demystify health insurance policies, helping you understand your coverage benefits and guiding you through the step-by-step process of appealing insurance denials.
System Coordination
We assist in managing transitions of care—such as moving safely from a hospital stay back to home health care—ensuring no critical details fall through the cracks.
Community Resource Mapping
We pinpoint hidden local resources, such as medical transport services, specialized pharmacies, or social work programs that can ease your daily logistical stress.
Patient Education
What It Means for You
True health equity begins with health literacy. When you understand how your body works, how your medications interact, and what your rights are within a hospital system, the power dynamic shifts. An educated patient is a safer, more confident self-advocate who experiences measurably better health outcomes.
How We Step In
Tailored Educational Guides
We provide clear, culturally relevant, and evidence-based materials focused on preventative wellness, disease management, and health self-monitoring.
Interactive Workshops & Resources
We host community-focused learning opportunities designed to break down health topics into practical, everyday lifestyle tools for families.
Shared Decision-Making Frameworks
We teach you how to evaluate the risks and benefits of proposed medical interventions, giving you the tools to collaborate with your medical providers as an equal partner in your own healing.
Programs & Services
Patient Advocacy & Navigation
- One-on-one advocacy support for cancer and rare disease patients
- Assistance understanding diagnoses, treatment options, and care plans
- Support during medical appointments (virtual or in-person when possible)
- Help with insurance appeals and denials
- Coordination between providers and specialists
Access to Care Support
- Assistance locating specialists and treatment centers
- Transportation and lodging resource referrals
- Insurance enrollment guidance (Medicaid, Medicare, marketplace plans)
- Help navigating disability benefits (SSDI/SSI guidance)
Prescription & Financial Assistance
- Enrollment assistance for pharmaceutical patient assistance programs
- Co-pay assistance navigation
- Grants and foundation funding referrals
- Medication cost comparison and affordability strategies
Advance Directive Assistance and Digital Legacy Recording Services
- Advance care planning education
- Assistance with advance directives and healthcare proxies (educational support; legal referrals when needed)
- Personal legacy projects (letters, ethical wills, video messages)
- Family preparedness planning resources
Request Support
If you would like to receive support, please complete our confidential intake form. Our team will review your information and contact you within 24–48 hours.
What to Expect
After submitting your request:
- Our team reviews your information
- A team member will contact you
- We work with you to identify next steps and resources
Your Privacy Matters
Your information is handled with care and respect.
We use secure, HIPAA-compliant systems to protect your personal and health information.
Frequently Asked Questions
What does a patient advocate do?
A patient advocate helps patients and families understand healthcare options, access resources, and overcome healthcare barriers.
Who can receive support?
Patients, caregivers, and families facing cancer, rare diseases, and healthcare challenges.
How can I help?
Volunteer, donate, join our programs, or share our resources.