Programs & Services

    • One-on-one advocacy support for cancer and rare disease patients

    • Assistance understanding diagnoses, treatment options, and care plans

    • Support during medical appointments (virtual or in-person when possible)

    • Help with insurance appeals and denials

    • Coordination between providers and specialists

    • Assistance locating specialists and treatment centers

    • Transportation and lodging resource referrals

    • Insurance enrollment guidance (Medicaid, Medicare, marketplace plans)

    • Help navigating disability benefits (SSDI/SSI guidance)

    • Enrollment assistance for pharmaceutical patient assistance programs

    • Co-pay assistance navigation

    • Grants and foundation funding referrals

    • Medication cost comparison and affordability strategies

    • Advance care planning education

    • Assistance with advance directives and healthcare proxies (educational support; legal referrals when needed)

    • Personal legacy projects (letters, ethical wills, video messages)

    • Family preparedness planning resources

    • Targeted outreach to underserved communities

    • Education workshops on cancer and rare disease awareness

    • Community partnerships to reduce disparities in diagnosis and treatment

    • Policy advocacy to amplify patient voices

    • Caregiver guidance and education

    • Support group referrals

    • Bereavement and transition resource connections

Legal and financial documents on a wooden desk, including a living trust agreement, last will and testament, and financial planning worksheet, with reading glasses, a pen, a clock, and a potted plant nearby.